Frequently Asked Questions
TELL ME MORE ABOUT THE FOLLOW-UP REQUIREMENTS.
What is the "Sister Study Health Update?"
Every year, we will send you a “Sister Study Health Update” that you can use to record major changes in your health status (for example, a diagnosis of breast cancer, heart attack, etc.). We ask you to return it even if there have not been any changes to your health. If you develop any medical conditions, you may also let us know by calling us toll-free at 1-877-4SISTER and following the directions for enrolled participants.
What is the purpose of a follow-up questionnaire? Why do I have to give you more information? How often will I have to do this?
We will ask you to complete a follow-up questionnaire every two years. The follow-up questionnaire or interview will let us update your health status in more detail than we can with the Sister Study Health Updates. The follow-up questionnaires will also allow us to ask questions that will address any new theories about breast cancer that may arise.
How will I get the results of the study?
It is important to us that you learn results from this study as soon as possible. We will send you regular newsletters with highlights of study results. Results of the study will be published in scientific journals, and we will also post these on our web site, www.sisterstudy.org and provide links to the journals.